CAGC Policies and Statements

Possible US Supreme Court overturning of both Roe and Casey

May 6, 2022

Statement from the CAGC BoD to our membership regarding the possible US Supreme Court overturning of both Roe and Casey.

The leaked draft SCOTUS (US Supreme Court) opinion on the overturning of both Roe and Casey poses an alarming threat to the right to access legal abortion in the United States of America. The Canadian Association of Genetic Counsellors (CAGC) strongly supports the right to autonomy over one’s body and access to legal, safe, professionally-performed abortions.

As a profession, we strive to provide pregnant individuals with comprehensive information in a non-directive manner to empower informed reproductive decision-making that aligns with personal values, needs, and circumstances. This includes the option to abort a pregnancy affected with a genetic condition and/or anomalies.

The CAGC stands with patients and our colleagues in the United States of America in calling for the US Supreme Court to maintain the right to a legal, accessible, timely, and safe abortion.

2022 Board of Directors

Emily Fox   Danna Hull   Alessandra Cumming   Melanie Napier   Kristen Miller   Julia Tagoe
Hana Sroka   Leanne Mercer   Tina Babineau Sturk   Grace Ediae

Kamloops Residential Schools Statement 

June 7, 2021

Statement from the CAGC Board of Directors to our membership regarding the remains of 215 children found at the Kamloops Indian Residential School

The recent discovery of the bodies of 215 children in a mass unmarked grave at a former residential school in Kamloops, BC has left us all both horrified and heartbroken for these children, their families, and for Indigenous communities across this country.

This unthinkable discovery reminds us that unacknowledged violence and discrimination against Indigenous peoples are not relics of the distant past. We stand in solidarity with the Tk'emlúps te Secwépemc First Nation and other Indigenous communities as we mourn these children whose lives were taken. We echo the call for truth and reconciliation.

We recognize that our words are not enough, and we continue to commit our efforts to become stronger allies and anti-racist partners for our members, colleagues, students, patients, and broader communities.

We encourage our membership to continue to educate themselves about the residential school system in Canada and the impact that it has on Indigenous People today. Metis author and lawyer Chelsea Vowel’s book titled “Indigenous Writes: A Guide to First Nations, Metis and Inuit Issues in Canada” is one excellent resource. For broader education around Indigenous histories and contemporary issues in Canada there is a free Massive Open Online Course (MOOC) from the University of Alberta (access here). The San’yas Indigenous Cultural Safety Training course may be relevant to genetic counsellors in our professional practice as it promotes understanding and partnership between health care providers and Indigenous people (access here). This is by no means an exhaustive list and is intended to be used as a starting point for those looking for guidance.

Individuals who are triggered by this discovery may wish to reach out to The Indian Residential School Survivors Society Crisis Help Line (p.1-866-925-4419) which provides 24-hour access to emotional and crisis support.

We also encourage our members to reach out to the CAGC BOD directly with your thoughts, emotions, reactions, and calls for action.

2021 Board of Directors
Alessandra Cumming    Emily Fox   Julia Tagoe    Melanie Care    Ingrid Ambus    Hana Sroka   
Catherine Hudon   Candice Jackel-Cram   Kristen Miller   Melanie Napier    Michaela Bercovitch-Sadinsky

Anti-Asian Racism

March 29, 2021

Statement from the CAGC Board of Directors to our membership regarding recent acts of violence and racism towards the Asian Canadian Community:

Following the recent appalling murders carried out against Asian Americans in Atlanta, Georgia, a report published by the Chinese Canadian National Council (Toronto Chapter) illustrates the frequency of racism and violence experienced by the Asian Canadian community. The Canadian Association of
Genetic Counsellors denounces hate crimes directed toward this community and any other community.

In Canada, we often think that racist acts of hate happen somewhere else, but not here. We may think that Canada is somehow immune to racist ideologies or actions, but it is time that we stop accepting these falsehoods.

These recent events strengthen our resolve to become stronger allies and anti-racist partners for our members, colleagues, students, patients, and broader communities. The CAGC Board of Directors is committed to using our resources and platform to support and develop anti-racism initiatives. We are incorporating diversity, equity, and inclusion efforts in many of our organizational activities. The Board of Directors supports the work of our committees in developing anti-racism resources to help equip our members with knowledge and skills to combat prejudice. This includes webinars focusing on
examining our ingrained biases, and focused content at the Annual Education Conference. We humbly recognize that there is much more to do. We re-affirm our commitment to doing this work.

We in the CAGC extend our support and solidarity to the Asian Canadian community. We stand with
you in calling for action.

2021 Board of Directors

Alessandra Cumming   Emily Fox   Julia Tagoe   Melanie Care   Ingrid Ambus   Hana Sroka
Catherine Hudon   Candice Jackel-Cram   Kristen Miller   Melanie Napier   Michaela Bercovitch-Sadinsky

Black Lives Matter

June 4, 2020

Statement from the CAGC BOD to our membership regarding the current human rights crisis affecting Black Members of our personal and professional communities:

As members of the Canadian Association of Genetic Counsellors, we are witnessing a world in pain – the pain of racism and injustice. It’s hard to find the right words, but our hearts are open to the experiences of the Black community.

As a profession, we acknowledge the roots of medical genetics in the eugenics movement of the early 20th century. We continue to confront the pain and discomfort of this history, and to evolve as a profession with the core pillar of unconditional positive regard for our patients. As written in our code of ethics: Above all, genetic counsellors are expected to demonstrate respect for others, regardless of race, religion, creed, sexual preference, gender, ability, and socio-economic or genetic background. Today, we acknowledge that our aspiration to this ideal has been imperfect, and insufficient.

As professionals who depend on effective communication, genetic counsellors feel lost at times when words seem inadequate. We must remember that a vital part of communication is to listen. We must respect and hear the stories of our members and patients who are living with racial injustice. We must remove ourselves from our places of comfort and privilege and confront our inherent biases, recognizing that we have been shaped by a culture that has done great harm and injustice to many. We must acknowledge that our profession does not reflect the diversity of the population we serve, and we must
work to address this.

We stand with our Black patients and colleagues, and the Black community around the world, in calling for an end to police brutality and racial discrimination. Black Lives Matter. Being anti-racist is an on-going process and we are working on being better allies and better advocates. This conversation is only beginning. There is much work to be done.

Our organization will be making a donation on behalf of our members to the Federation of Black Canadians ( in the amount of $1000.

Financial support by our members could be directed to the following local organizations:

2020 CAGC Board of Directors

Melanie Care   Alessandra Cumming   Anastasia Richardson   Candice Jackel-Cram   Catherine Hudon
Deanna Alexis Carere   Ingrid Ambus   Julia Tagoe   Marie-Jacqueline Thomas   Sohnee Ahmed

Conflict of Interest Disclosure Policy for CAGC Organizational Leaders and Staff

Download the policy here

Direct-to-Consumer Genetic Testing

Canadians are increasingly accessing direct-to-consumer (DTC) genetic testing. DTC testing is defined as a test that is marketed directly to and ordered by the consumer, and not prescribed by the patient’s healthcare provider. The CAGC believes that Canadians have the right to make
informed decisions about DTC testing, taking into account the potential benefits, limitations and risks.

The CAGC believes that commercial providers of DTC genetic testing should engage in responsible marketing of their products, and provide customer support throughout the testing process. Ideally companies should provide consumer access to qualified medical genetics professionals.

Genetic counsellors are uniquely equipped to provide pre- and post-test genetic counselling to individuals who elect to pursue DTC genetic testing. However, Canadian consumers should be aware that the availability of provincially funded genetic counselling services for such tests may
be unavailable or very limited.

Approved by the CAGC Board of Directors: April 11, 2018

Download the PDF version here

External Support for Education Programs, Webinar Endorsement, and Publications

Download the policy here

Genetic Discrimination

The CAGC is opposed to genetic discrimination. Genetic discrimination is defined as the unfair use of genetic test results or genetic risk determined by family history.

Individuals should not be deterred from seeking genetic services, undergoing genetic testing or participating in genetics research out of concern for genetic discrimination.  Individuals should not be coerced to undergo genetic testing by third parties.  The decision to have genetic testing is a personal one and should be at the discretion of the individual.

Individuals should be protected from genetic discrimination by employers, insurers and society. The CAGC supports and encourages the immediate development and implementation of legislation to protect the Canadian public from unfair use of genetic test results or family history.

Read the December 2012 Press Release

Genetic Non-Discriminaton Act (formerly Bill S-201) Fact Sheet - updated June 2018

This document has been developed and endorsed by the Canadian College of Medical Geneticists (CCMG) and the Canadian Association of Genetic Counsellors (CAGC) with the financial support of Health Canada. The CCMG and the CAGC are the Canadian certifying bodies for Medical Geneticists and Genetic Counsellors, respectively. Together with provincial and federal government authorities and other professional bodies, the CCMG and CAGC play an important role in establishing standards for the provision of genetic services in both research and clinical contexts in Canada.

The CCMG and CAGC both strive to foster a culture of ethical behavior in the field of medical genetics. The essence of the process of informed consent is to maintain the rights and welfare of research participants and to protect research participants’ personal autonomy. Both the CCMG and the CAGC believe that a non-coercive approach to recruitment of research participants is necessary for an ethically responsible process of informed consent.

Please download the full document for details on how to approach genetic research, and in particular, the informed consent process for genetic research.

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